Internet Resources
As a service to our viewers, ADFM provides in this
section links to various websites on the Internet that may be of
interest to Alzheimer's patients and their families. Please note that ADFM
is not associated in a commercial and/or legal capacity with any of
these websites and that ADFM does not take responsibility for the
contents of any of these websites. Please read our Disclaimer before proceeding to the other websites below.
Alzheimer's Disease Association Worldwide
Alzheiner's Diesease International www.alz.co.uk
ADI
is the international federation of 69 Alzheimer associations throughout
the world.Our key role is to build and strengthen Alzheimer
associations throughout the world, so they are better able to meet the
needs of people with dementia and their families. ADI was founded in
1984 and is registered as a not-for-profit organisation in the USA. Our
offices are now in the UK.
USA - Alzheimer's Association www.alz.org
ADI's
largest member association, this excellent all round site includes
news, updates on research, comprehensive information for caregivers,
and an area on public policy in the USA. Also has contact details for
chapter network across the USA.
Canada - Alzheimer Society of Canada www.alzheimer.ca
Includes
information about Alzheimer's disease and dementia, a discussion forum
for caregivers and an 'Ask the Expert' e-mail service for questions not
answered on the site. Also has a library of available publications with
an on-line order form. In English and French.
Alzheimer's Association NSW, Australia www.alznsw.asn.au
Includes
news and information on Alzheimer's disease in Australia, reading lists
and on-line versions of their HelpNotes, including versions in Italian,
Chinese, Greek, Spanish, Polish, Arabic, Croatian, Macedonian, Maltese
and Vietnamese.
USA - Alzheimer's Association Northern Virginia Chapter www.alz-nova.org
Includes information about dementia, tips for caregivers, an extensive bibliography and a list of web-sites.
Links to other ADI member association sites can be found on the National Alzheimer's associations page.
General resources about dementia
Alzheimers.com www.alzheimers.com
Based
in the USA and funded by Bayer (pharmaceutical company), Alzheimers.com
has a lot of information on all aspects of Alzheimer's disease, a
community bulletin board, research news and daily updates.
Dementia Web www.dementia.ion.ucl.ac.uk
Includes
CANDID - support, advice and information for caregivers, a virtual
caregiver support live chat-room, as well as the International Working
Group on Harmonisation Of Dementia Drug Guidelines and the Dementia
Research Group.
Alzheimer Europe www.alzheimer-europe.org
An
organisation which aims to improve the care and treatment of people
with Alzheimer's disease through intensified collaboration between its
member associations in Europe. Includes contact details for
associations around Europe. Available in English, French, Greek,
Italian, Spanish, Dutch, Portuguese, Swedish, Danish and Finnish.
Novartis Pharma Alzheimer's Information www.alzheimer-info.com
Information
page solely about Alzheimer's, run from Novartis Pharma's web-site.
This gives information about Alzheimer's and some products used to
treat it.
Alzheimer's Disease Education and Referral (ADEAR) Center www.alzheimers.org
A
service of the US National Institute on Ageing, their site has
information on Alzheimer's disease, and also details of publications, a
bibliography database and a clinical trials database.
Research
10/66 Dementia Research Group www.alz.co.uk/1066
Epidemiological
research group affiliated to ADI, encouraging active collaboration
between research groups in different developing countries and between
developed and developing countries. Includes prevalence figures,
research news and a list of publications.
Alzheimer Research Forum www.alzforum.org
This
site includes news and information about the latest dementia research.
The site is aimed at caregivers, researchers and doctors. Includes a
frequently asked questions section and has a large database of
publications.
The Nun Study www.coa.uky.edu/nunnet
The
nun study is a longitudinal study of ageing and Alzheimer's disease
which began in 1986 in the USA. This web-site details research findings
to date and the background to the study.
Alzheimer's Disease Co-operative Study www.alz.ucsd.edu
Sponsored
by the National Institute of Aging in the USA, this site provides
details of ongoing clinical trials in the USA and useful resources and
links
Caregiver resources
Family Caregiver Alliance www.caregiver.org
This
web-site provides an all round information service, providing support
for families, caregivers, professionals, policy makers and the media.
It has a good resource centre including an on-line support group,
caregiver consultation and a list of community services in the San
Francisco Bay Area. You can also post caregiving questions to expert
staff in the Ask FCA section.
ALZwell Alzheimer's caregivers page www.alzwell.com
This
site provides comprehensive information and links on all aspects of
caring. Includes caregiver stories, tips, a discussion forum, a
chat-room and an extensive caregiver book store.
Ageing sites
Novartis Foundation for Gerontology www.healthandage.com
Site
aimed at the patient, doctor and other healthcare professionals for
information on aspects of ageing, including dementia. Also includes an
'ask the expert', a bulletin board and educational materials.
Ageing & Health at WHO www.who.int/ageing
Comprehensive site on all aspects of ageing.
